Not So Fake Now Is It?

Dear "President" Trump,

I know you have a short attention span so I'll make this as quick as I can.

Please step down immediately.  You were given the control of the greatest country on Earth.  Under your control the reputation of your office and our country have reached historical lows.

You bragged during the campaign that our country would be so sick of WINNING under your leadership.  You were wrong.  Now you need to admit it.

The recent racial violence over this weekend is your fault.  You continue to spew real world problems as "Fake News".  The undereducated and morally defunct people that support you don't know any better.

All educated people know that the foundations of the kkk (small letters intended) and the neo-nazis are wrong.  All people are created equal.  Our entire country was built on that premise.  It took too long and too many people to die for that truth to be believed.

Then you come telling people news is fake and people shouldn't believe them.  They start believing things that aren't true.  I'm sorry, but your whole "Fake News" mantra just fuels the ignorant.  Then we have racists quoting you about taking the country back.  They are worshipping your words and ideas without direction.

Your whole administration seems dead set on undoing everything President Obama created.  Your dislike of Obama, for whatever reason, is unjust.  Your actions are fueling the haters.

If you contend to remain in office please start acting presidential.  Every citizen deserves to have a President they can respect.  I did not vote for every winning President, but I did respect the office.  Until now.

You have the position to change the world.  Start acting like it.

What's In Your Bucket?

People are amazing creatures.  If you watch them long enough you might scratch your head until you're bald.

In the disabled community there has been an ongoing debate regarding society's propensity to kill off us gimpy ones.  There have been many stories in the news involving the disabled and death.  The reactions to these stories are different when it involves a disabled individual.

When the world learned that Robin Williams had committed suicide we were shocked.  Stunned that this man of high tense hilarity had killed himself left many to wonder why.  Many assumed it was his life long struggles with depression that drove him to hang himself.  Then when we learned it was more likely he could not handle the dementia diagnosis he had recently received.  Society was more like, oh yeah I can understand that.  Williams couldn't handle being disabled, society approved.

There was a mother in 2014 who killed her THREE disabled children because it was very difficult to care for them.  One would think a murderer who confesses would spend the rest of their life in prison or a mental institution.  Society seemed to agree with her and she was home with her last non-disabled child in a year's time.

There was a woman with ALS that hosted a two day party then was euthanized at the end.  She lived in a state where that is legal.  The media loved this story.  

The most recent story is one that really made me scratch my future bald spot.  A 14 year old girl from Wisconsin decide she was tired of being disabled and in pain.  She wants to choose hospice and no longer use her ventilator.  Because she was only 14 she did want to experience Prom.  So word got out, money and services were donated and about a 1000 people helped this girl at her "Last Dance".  The girl in this story and I have the same disease, Spinal Muscular Atrophy.  While SMA is no picnic, its also no gloom and doom existence either.  But, the media ate up this story and people were Ok with a 14 year old, basically, committing suicide.  A fund was setup that raised over $30,000.

FOR A 14 YEAR OLD GIRL TO DIE

I compare myself to this girl because we have the same disease.  I, however, want to live.  Am I in pain?  Hell yeah.  While writing this blog I have to stop every 5 minutes just to shift my butt to avoid getting a sore.  My neck is bent at an awful angle which is painful every night at bedtime.  Because I can't eat very well I've lost 100 pounds in the last three years.  I'm so skinny my bones are making sores from the inside.

Despite my listed woes, (trust me there are more), I WANT TO LIVE!  

• I want to see my son become whatever he chooses.  
• I'd like to see the White Sox, Bears, and Blackhawks win another championship.
• I want to have drinks with Tom Hanks, Barack Obama, Jerry Seinfeld, and Jim Gaffigan.
• I want to go on vacation with my mother, who raised three disabled children and didn't kill us.
• I want a roll in shower.
• I want to see my Facebook friends & family face to face.

I want to see if society will agree.  

Society needs to know, being disabled is not the end of the world.  Sometimes, being disabled, is the beginning of a whole new world.

Will society share my story and donate to living?  Let's find out.

If you support living, share this story and/or click life here, 

GoFundMe.com/markploch